Lupus juvenil
Les debo confesar que el lupus eritematoso sistemico juvenil es el culpable de que haya hecho la sub especialidad en reumatología pediátrica, durante mi formación como pediatra, me enamore de la complejidad y la amplia variedad de presentación en los niños, mi asombro fue mayor al darme cuenta que en la laguna no había reumatologos pediatras, entonces me fui a la ciudad de México al mayor centro de preparación a nivel nacional , CENTRO MEDICO NACIONAL LA RAZA, y fue así que me convertí en la primera reumatologa pediatra en la región.
He diagnosticado y tratado varios casos de lupus en diferentes hospitales privados, e incluso a nivel institucional , que aunque trabajo como pediatra, eso no me impide echar mano de mis conocimientos como sub especialista en varios casos, el resultado, niños diagnosticados de manera temprana, tienen una mayor calidad de vida.
¿En qué consiste el lupus juvenil?
El lupus juvenil eritematoso sistémico (LES) es una enfermedad autoinmune crónica que puede afectar varios órganos del cuerpo, especialmente la piel, las articulaciones, la sangre, los riñones y el sistema nervioso central. El término «crónica» significa que puede durar mucho tiempo. «Autoinmune » significa que se trata de un trastorno del sistema inmunitario, que en lugar de proteger al cuerpo de las bacterias y los virus, ataca a los propios tejidos del paciente.
¿Cuáles son las causas de la enfermedad?
El LES no es contagioso. Es una enfermedad autoinmune, en la que el sistema inmune pierde su capacidad de distinguir entre las sustancias extrañas de las de los proprios tejidos o células. El sistema inmunitario comete un error y produce, entre otras sustancias, autoanticuerpos que identifican las células normales de la propia persona como si fuesen extrañas y las atacan. El resultado es una reacción autoinmunitaria, que da lugar a la inflamación de órganos específicos (articulaciones, riñones, piel, etc.).
Lupus juvenil puede producirse en familias. Los niños heredan algunos factores genéticos, aunque todavía desconocidos, de sus progenitores que pueden predisponerles a desarrollar LES.
Leer: Enfermedad reumática y calidad de vida
¿Cuáles son los síntomas?
Los primeros en aparecer son datos comunes y que se dejan pasar desapercibidos, pensado en gripe o cualquier otro proceso infeccioso pues tienen fiebre, cansancio, fatiga, pérdida de peso.
La afectación de la piel y de las mucosas es muy frecuente y puede incluir varias erupciones, fotosensibilidad (en la que la exposición a la luz del sol desencadena una erupción cutánea) o úlceras dentro de la nariz o de la boca. La erupción cutánea de tipo «mariposa» por la nariz y las mejillas se produce entre un tercio y la mitad de los niños afectados. En ocasiones, también puede percibirse una mayor pérdida de pelo (alopecia). Las manos se pueden volver rojas, blancas y azules cuando se exponen al frío (fenómeno de Raynaud). Los síntomas también pueden incluir inflamación y rigidez de las articulaciones, dolor muscular, anemia, fácil aparición de hematomas, dolores de cabeza, convulsiones y dolor en el pecho. La afectación de los riñones está presente en la mayoría de los niños con LES y es un determinante principal del desenlace a largo plazo de la enfermedad.
Hay que tomar en cuenta que el lupus en los niños se presenta de una manera mas agresiva y aparatosa que como se presenta en los adultos, de ahí que los reumatólogos pediátricos manejemos tratamientos mas “Fuertes y agresivos”.
El diagnóstico del LES se basa en una combinación de síntomas (como dolor), signos (como fiebre) y exámenes (de orina y de sangre); después de haber descartado otras enfermedades. No todos los síntomas y signos se presentan al mismo tiempo; esto hace que el diagnóstico de LES sea difícil de hacer con rapidez, ya que el pediatra o medico general no suele pensar en lupus en los niños.
¿Cuál es la importancia de los análisis?
Los exámenes de laboratorio pueden ayudar a diagnosticar el LES y a decidir qué órganos internos están afectados, en caso de haberlos. Los exámenes regulares de sangre y orina son importantes para supervisar la actividad y la intensidad de la enfermedad y para determinar lo bien que se toleran los medicamentos. Hay varios exámenes que pueden ayudar a diagnosticar LES y a decidir qué medicamentos recetar, así como a evaluar si los medicamentos recetados están funcionando bien para controlar la enfermedad, por lo que si!!! Son necesarias las visitas a laboratorio hasta mantener quieta la enfermedad donde los exámenes se piden mas espaciados.
¿Puede tratarse o curarse? En la actualidad, no hay un medicamento específico para curar el LES. El tratamiento de lupus juvenil ayudará a controlar los dignos y síntomas de esta enfermedad y ayudará a evitar sus complicaciones, incluido el daño permanente a los órganos y tejidos.
Cuando se diagnostica LES por primera vez, suele ser muy activo. En esta etapa, puede requerir grandes dosis de medicamentos para controlar la enfermedad y evitar el daño a los órganos. En muchos niños, el tratamiento mantiene bajo control los brotes de LES y la enfermedad puede entrar en remisión (inactividad), llegado ese momento se necesita poco o ningún tratamiento.
¿Existe algún tratamiento no convencional o complementario? Existen muchos tratamientos complementarios y alternativos disponibles y esto puede confundir a los pacientes y sus familiares. Piense con atención los riesgos y beneficios de probar estos tratamientos, puesto que el beneficio demostrado es escaso y pueden ser costosos, tanto en términos de tiempo, carga para el niño y dinero. Lamentablemente durante mi formación como reumapedia me tocaron varios casos donde padres decidieron abandonar tratamiento, por tratamientos “milagro”, el resultado los niños llegaban peor y en recaída en cuestión de mes o meses.
¿Cuánto tiempo durará la enfermedad?
Tal y como se ha mencionado anteriormente, no existe una cura para el LES. Los signos y síntomas del LES pueden ser mínimos o incluso ausentes si los medicamentos se toman de forma regular tal y como el reumatólogo pediátrico lo ha recetado. Si no se toman los medicamentos de forma regular, las infecciones, el estrés y la luz solar pueden ocasionar el empeoramiento del LES. Este empeoramiento también se conoce como «brote de lupus». Suele ser difícil predecir cuál será la evolución de la enfermedad.
¿Cuál es la evolución a largo plazo (el pronóstico) de la enfermedad?
El desenlace del LES mejora de forma notable cuando se alcanza el control temprano y prolongado de la enfermedad con el uso de la hidroxicloroquina, los corticoesteroides y los Fármacos modificadores de enfermedad. Muchos pacientes con LES de inicio en la infancia tendrán muy buena evolución. Sin embargo, la enfermedad puede ser grave y potencialmente mortal y puede permanecer activa durante la adolescencia y la edad adulta. El pronóstico del LES en la infancia depende del grado de afectación de los órganos internos. Los niños con enfermedad importante de los riñones o del sistema nervioso central necesitan un tratamiento más agresivo. Por otro lado, la erupción cutánea leve y la artritis pueden controlarse con facilidad. Sin embargo, el pronóstico para cada niño es impredecible.
Dra. Nayma Marybel Ruiz Vela
Pediatra sub especialista en reumatología pediátrica
Comments (89)
whoah this blog is wonderful i really like studying your articles. Stay up the great work! You realize, lots of people are looking round for this information, you can help them greatly.
https://digipioneers.ru/dom-v-stile-a-frejm-plyusy-i-minusy/
Эта статья превзошла мои ожидания! Она содержит обширную информацию, иллюстрирует примерами и предлагает практические советы. Я благодарен автору за его усилия в создании такого полезного материала.
https://jalon.ru/kak-klast-cherepiczu-bitumnyj-produkt/
I must say this article is extremely well written, insightful, and packed with valuable knowledge that shows the author’s deep expertise on the subject, and I truly appreciate the time and effort that has gone into creating such high-quality content because it is not only helpful but also inspiring for readers like me who are always looking for trustworthy resources online. Keep up the good work and write more. i am a follower. https://webdesignfreelancerfrankfurt.de/
Thanks for the tips you are sharing on this blog. Another thing I’d like to say is always that getting hold of duplicates of your credit score in order to examine accuracy of each and every detail may be the first step you have to execute in credit score improvement. You are looking to clean up your credit history from damaging details faults that wreck your credit score.
https://aslitarcanglobal.com/afro-hair-transplant-in-turkey/
Thank you for sharing superb informations. Your website is so cool. I’m impressed by the details that you have on this blog. It reveals how nicely you understand this subject. Bookmarked this website page, will come back for more articles. You, my friend, ROCK! I found just the information I already searched everywhere and simply couldn’t come across. What a perfect web-site.
https://www.casinoesonline.com/
Right now it appears like WordPress is the top blogging platform available right now. (from what I’ve read) Is that what you are using on your blog?
https://expertspeak.ru/honor-90-gt-poyavilsya-v-prodazhe/
Статья содержит актуальную информацию по данной теме.
https://alexiada.ru/category/hi-tech/
I like the valuable information you provide in your articles. I?ll bookmark your blog and check again here frequently. I’m quite certain I will learn a lot of new stuff right here! Good luck for the next!
https://www.google.com/viewer/place?mid=2Fg2F1q6n2zlzt
**prostadine**
prostadine is a next-generation prostate support formula designed to help maintain, restore, and enhance optimal male prostate performance.
Эта статья является примером качественного исследования и профессионализма. Автор предоставил нам широкий обзор темы и представил информацию с точки зрения эксперта. Очень важный вклад в популяризацию знаний!
https://alexiada.ru/category/sport/
Great article, thank you for sharing these insights! I’ve tested many methods for building backlinks, and what really worked for me was using AI-powered automation. With us, we can scale link building in a safe and efficient way. It’s amazing to see how much time this saves compared to manual outreach. https://seoexpertebamberg.de/
Thanks for the tips about credit repair on this excellent site. The thing I would offer as advice to people should be to give up the particular mentality that they’ll buy currently and pay back later. As a society most of us tend to make this happen for many factors. This includes vacations, furniture, plus items we wish. However, you must separate your wants from all the needs. As long as you’re working to raise your credit score actually you need some trade-offs. For example it is possible to shop online to save money or you can look at second hand shops instead of highly-priced department stores to get clothing.
https://sl.bing.net/lpGOaySg9c
I have been browsing on-line more than three hours today, yet I by no means found any attention-grabbing article like yours. It is pretty price enough for me. In my view, if all site owners and bloggers made just right content as you did, the net shall be a lot more useful than ever before.
https://www.google.com.bo/url?sa=t&url=https://789betpp.com/
**sugarmute**
sugarmute is a science-guided nutritional supplement created to help maintain balanced blood sugar while supporting steady energy and mental clarity.
Полезно, что автор предоставил разные точки зрения на обсуждаемую тему.
https://candymail.org/
**glpro**
glpro is a natural dietary supplement designed to promote balanced blood sugar levels and curb sugar cravings.
Автор старается предоставить объективную картину, оставляя читателям возможность самостоятельно сформировать свое мнение.
https://chefevents.ru/hotite-uznat-kak-prigotovit-appetitnye-syrniki-kotorye-nikogo-ne-ostavyat-ravnodushnym-poprobujte-ispolzovat-etot-reczept-kogda-budete-planirovat-sleduyushhij-zavtrak/
Your point of view caught my eye and was very interesting. Thanks. I have a question for you.
**mitolyn**
mitolyn a nature-inspired supplement crafted to elevate metabolic activity and support sustainable weight management.
**zencortex**
zencortex contains only the natural ingredients that are effective in supporting incredible hearing naturally.
**prodentim**
prodentim an advanced probiotic formulation designed to support exceptional oral hygiene while fortifying teeth and gums.
**vitta burn**
vitta burn is a liquid dietary supplement formulated to support healthy weight reduction by increasing metabolic rate, reducing hunger, and promoting fat loss.
**yu sleep**
yusleep is a gentle, nano-enhanced nightly blend designed to help you drift off quickly, stay asleep longer, and wake feeling clear.
**synaptigen**
synaptigen is a next-generation brain support supplement that blends natural nootropics, adaptogens
**nitric boost**
nitric boost is a dietary formula crafted to enhance vitality and promote overall well-being.
**glucore**
glucore is a nutritional supplement that is given to patients daily to assist in maintaining healthy blood sugar and metabolic rates.
**wildgut**
wildgutis a precision-crafted nutritional blend designed to nurture your dog’s digestive tract.
rwqaws
This really answered my drawback, thank you!
https://mediclime.com/gut-digestive-health/synogut-your-natural-solution-for-gut-health-buy-75
I like the valuable information you provide in your articles. I’ll bookmark your weblog and check again here regularly. I’m quite sure I will learn a lot of new stuff right here! Good luck for the next!
https://bazorg.ru/
**pinealxt**
pinealxt is a revolutionary supplement that promotes proper pineal gland function and energy levels to support healthy body function.
**energeia**
energeia is the first and only recipe that targets the root cause of stubborn belly fat and Deadly visceral fat.
**boostaro**
boostaro is a specially crafted dietary supplement for men who want to elevate their overall health and vitality.
**prostabliss**
prostabliss is a carefully developed dietary formula aimed at nurturing prostate vitality and improving urinary comfort.
Thanks for all your efforts that you have put in this. very interesting information.
https://dondego.es/madrid/list/qu-hacer-en-madrid-este-fin-de/
**breathe**
breathe is a plant-powered tincture crafted to promote lung performance and enhance your breathing quality.
Great write-up, I?m normal visitor of one?s blog, maintain up the nice operate, and It is going to be a regular visitor for a lengthy time.
https://images.google.gg/url?q=https://xx88.asia/
esteworld
**potent stream**
potent stream is engineered to promote prostate well-being by counteracting the residue that can build up from hard-water minerals within the urinary tract.
esteworld
şaban çelebi
güncel öztürk
mehmet emre dinç
medart
Thanks for your posting on the traveling industry. We would also like contribute that if you’re a senior taking into account traveling, it is absolutely crucial that you buy traveling insurance for older persons. When traveling, retirees are at biggest risk of experiencing a health emergency. Getting the right insurance plan package for the age group can safeguard your health and provide peace of mind.
https://www.wtxl.com/search?q=HowToIceCream.com+has+the+best+healthy+protein+low-cal+ice+cream+recipes+for+their+Ninja+Creami+7-in-1+ice+cream+maker
The things i have always told people is that while searching for a good on the net electronics store, there are a few variables that you have to remember to consider. First and foremost, you need to make sure to look for a reputable and in addition, reliable retail store that has picked up great evaluations and scores from other people and market sector experts. This will ensure you are getting along with a well-known store to provide good support and assistance to its patrons. Many thanks sharing your ideas on this blog site.
http://google.cm/url?q=https://xx88.asia/
Thanks for sharing. I read many of your blog posts, cool, your blog is very good.
**hepatoburn**
hepatoburn is a premium nutritional formula designed to enhance liver function, boost metabolism, and support natural fat breakdown.
Heya i am for the primary time here. I found this board and I in finding It really useful & it helped me out a lot. I’m hoping to present something back and help others such as you helped me.
https://www.google.com.gh/url?q=https://xx88.asia/
**hepatoburn**
hepatoburn is a potent, plant-based formula created to promote optimal liver performance and naturally stimulate fat-burning mechanisms.
**cellufend**
cellufend is a natural supplement developed to support balanced blood sugar levels through a blend of botanical extracts and essential nutrients.
**prodentim**
prodentim is a forward-thinking oral wellness blend crafted to nurture and maintain a balanced mouth microbiome.
**flow force max**
flow force max delivers a forward-thinking, plant-focused way to support prostate health—while also helping maintain everyday energy, libido, and overall vitality.
What i do not realize is actually how you are not really much more well-liked than you might be right now. You’re very intelligent. You realize therefore considerably relating to this subject, made me personally consider it from numerous varied angles. Its like men and women aren’t fascinated unless it is one thing to do with Lady gaga! Your own stuffs great. Always maintain it up!
https://www.stonedepotus.com/about-us/
**revitag**
revitag is a daily skin-support formula created to promote a healthy complexion and visibly diminish the appearance of skin tags.
**neuro genica**
neuro genica is a dietary supplement formulated to support nerve health and ease discomfort associated with neuropathy.
sapphire hair clinic
hair neva
taner
ahd
nişanaşı
doktorkbb
dr basat
Эта статья оказалась исключительно информативной и понятной. Автор представил сложные концепции и теории в простой и доступной форме. Я нашел ее очень полезной и вдохновляющей!
https://digilider.ru/trejler-k-godzille-2014/
excellent put up, very informative. I wonder why the other specialists of this sector do not notice this. You must continue your writing. I am sure, you’ve a great readers’ base already!
http://www.evolutionary-ecology.com/sample/ccar1897.pdf
güncel öztürk
buk
crabs
murad çeltik
yürük
Статья предлагает объективный обзор исследований, проведенных в данной области. Необходимая информация представлена четко и доступно, что позволяет читателю оценить все аспекты рассматриваемой проблемы.
https://vestnik-sibiri.ru/chtoby-mashina-plavala-ili-letala-o-kakih-funkcziyah-svoih-avtomobilej-mechtayut-rossiyane-1-foto/
Your article helped me a lot, is there any more related content? Thanks!
**sleeplean**
sleeplean is a US-trusted, naturally focused nighttime support formula that helps your body burn fat while you rest.
hairneva
nişantaşı
ahd
I’m not sure why but this blog is loading very slow for me. Is anyone else having this issue or is it a problem on my end? I’ll check back later on and see if the problem still exists.
https://www.stonedepotus.com/about-us/
Автор старается оставаться объективным, чтобы читатели могли сформировать свое собственное мнение на основе предоставленной информации.
https://digiscope.ru/aleksandra-grant-i-kianu-rivz-ne-skryvayut-chuvstv-na-publike/
Thanks for the tips on credit repair on this amazing blog. A few things i would advice people would be to give up this mentality that they buy now and fork out later. Like a society we tend to make this happen for many factors. This includes family vacations, furniture, as well as items we want. However, you need to separate the wants out of the needs. When you’re working to improve your credit score you have to make some sacrifices. For example you are able to shop online to economize or you can visit second hand stores instead of high priced department stores with regard to clothing.
http://www.evolutionary-ecology.com/sample/ccar1897.pdf
Thanks for sharing. I read many of your blog posts, cool, your blog is very good.
One other issue is when you are in a predicament where you don’t have a co-signer then you may genuinely wish to try to make use of all of your school funding options. You’ll find many grants or loans and other scholarships that will offer you finances that can help with university expenses. Thanks alot : ) for the post.
https://500px.com/p/nhacaimax79?view=photos
I’ve been browsing online more than 2 hours today, yet I never found any interesting article like yours. It’s pretty worth enough for me. In my view, if all webmasters and bloggers made good content as you did, the web will be much more useful than ever before.
https://prestigeplanner.ru/v-finlyandii-predlozhili-obogrevat-doma-teplom-ot-serverov/
Great work! This is the type of info that should be shared around the internet. Shame on Google for not positioning this post higher! Come on over and visit my site . Thanks =)
https://www.thecityclassified.com/ads/coverage-professor-llc/
Great blog! Is your theme custom made or did you download it from somewhere? A theme like yours with a few simple tweeks would really make my blog shine. Please let me know where you got your design. With thanks
https://www.bigoven.com/user/nhacaimax79
Thank you, I’ve recently been searching for info about this topic for a while and yours is the best I have found out till now. However, what concerning the bottom line? Are you sure about the source?
https://okpozvonok.ru/kist
**memorylift**
memorylift is an innovative dietary formula designed to naturally nurture brain wellness and sharpen cognitive performance.
I loved as much as youll receive carried out right here The sketch is attractive your authored material stylish nonetheless you command get bought an nervousness over that you wish be delivering the following unwell unquestionably come more formerly again as exactly the same nearly a lot often inside case you shield this hike
Great article! I really appreciate the clear insights you shared – it shows true expertise. As someone working in this field, I see the importance of strong web presence every day. That’s exactly what I do at https://webdesignfreelancerhamburg.de/ where I help businesses in Hamburg with modern, conversion-focused web design. Thanks for the valuable content!
sapphire hair clinic